8/21/2018

I have to be honest, the last couple of days have had some big ups and downs.  I am thrilled at the response we’ve gotten from our field trip to the Dollar Tree…It’s kept me going when I haven’t felt the best.  And speaking of that, I probably shouldn’t share things like this, but I’ve decided I just don’t care.

If you’ve never had a colonoscopy, it takes a full day of eating nothing, but clear liquids, then in the evening you drink 16 oz. of the most horrible “prep” drink known to man, then follow it with 32 oz of water.  The water was the saving grace of that portion of the experience.  Then this morning, I had to do it all over again, only this time, every sip of the “prep” drink made me sick, and I mean sick.  I couldn’t keep it down.  So for every one sip of “prep,” I had five big swallows of water…otherwise, it wasn’t going to happen.  I even called the hospital and asked if I had to drink all of it, as I didn’t think I could do it.  In the end, I drank almost all of it, enough to finish the real prep (and I’m sure you know what that was.)

So we got to the hospital, and they put me in a room that had a television that changed it’s own channel every three to five minutes.  And you couldn’t choose a channel number, or use the down button for channels, you could only go forward.  So if you wanted to go back to the channel it just left, you had to go through roughly sixty channels to get there.  And of course you were only there for three to five minutes until it did it again.  It was a minor annoyance, one I could definitely live with.  Then came the IV…the nurse had a difficult time finding a vein that she liked, so put a tourniquet on both arms to see which hand she liked best.  There will be bruises from the tourniquets, as she wasn’t shy about how tight she wanted them….and even that wasn’t bad.

We were ready and waiting, and the time for my appointment came and went.  Then the nurse came in to tell me that their water had an issue, and was no longer clean…Didn’t sound like something that was healthy or viable, but they were going to work on it and get back to me.  I knew immediately that there was no way I was getting any procedure done today, and had already told Rich there was no possibility of me doing the “prep” again…Even in ten years, I told him, I would definitely remember, and not want to do it again.  The nurse gave me options…I could come back tomorrow and have it done, which meant no eating or drinking (or pain medication) for another 24 hours.  That’s out of the question…I haven’t eaten in a day and a half, and they wanted to make it almost three—no thanks…They said I could re-schedule and re “prep”…that’s no even a possibility.  So I told her I wasn’t rescheduling and I wasn’t going to stay for toast, and we left…I got home and drank Carnation Instant Breakfast and went to bed…crying of course, because of all I’d done to “prep” for the day, and never actually having anything done.

I know I should have the procedure done, but it’s just not in me to “reprep”…  I would love to say that I don’t let anything bother me, but this did.  It was too much, and I’m not going to put myself through it again.  And Rich is all right with it…

I think the part I want to stress is that I was not able to take any pain medication and without it, I struggle to function.  People in the medical community only see their specialty, which today, was not arthritis…So when they gave me a warm blanket and I put it under my lower back, the nurse came back and took it from under my back, and put it over me…I think I know where I want the blanket…So I explained I wanted it there for lower back pain, and she went to get another blanket….why didn’t she just ask me why I had the blanket behind me in the first place?  It was a long two days and I don’t often like to share my “real” life, but this has been something I needed to say.

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4 thoughts on “8/21/2018

  1. Hi Saundra,
    The medical community seems to have no concern for the patient, no compassion. I have had a colonoscopy, and a heart cath, and I don’t remember what else. I do know that, at 77. there will be no more procedures! Currently I’m waiting for my mail order prescription to be straightened out and to get the insulin I have now been without for two days. Not a good thing.
    I have a friend with RA and another with asthma. They have some awful stories to tell.
    I hope you never have such a terrible experience again.
    Barbara

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  2. Thanks so much for your kind words. I have never tried to bring my arthritis into the blog or the YT channel, as it’s not the focus, just a part of me. But today was so bad and I’m so frustrated, and I left out that I had failed a pre-screen called Colo-gard, where you basically (for lack of better words) poop in a box. That was almost two months ago, and even though I failed it, they took this long to set the colonoscopy.. I asked why there wasn’t a sense of urgency like with a failed mammogram, and the physician’s asst. for the colonoscopy doctor told me you can have polyps for fifteen years before they become an issue, if they ever do. I guess that made me think they aren’t too concerned about this procedure either, and since they cancelled it today…I decided I just can’t do it. Maybe I’ll change my mind, but somehow I think this cancellation was a voice from above, telling me it’s not that important. I’m probably just trying to rationalize my decision, but that’s what I think.
    The other thing I left out of the post, is that they were moving at least two patients to our primary hospital three blocks away, to continue whatever procedure they were there for, so I think they could have done the same with me. I just don’t think they really care about how this affects the patient, and from the things you’ve been through with your insulin, clearly they aren’t thinking about you either. Is there any way you can get a couple days worth from a local pharmacy until you get yours in the mail? it worries me that you don’t have any. My sister is a type 1 diabetic since age 4, so I know how important your insulin is.

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  3. I’m sorry you’ve had a bad experience. There are better choices for the prep as far as better tasting and lesser amounts. It may depend on a Doctor’s preference. My prep wasn’t bad years ago and nothing near the amount my husband had to drink.

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    1. When they cancelled the procedure, the nurse started giving different options for the prep, and I wondered where those options were a few days before, when we had the consult. The other thing that still baffles me, is I was in the “outpatient” portion of our hospital. A few blocks away is the big hospital with lots of surgery units….I heard them saying they were sending two people there by ambulance to “finish their procedures” and still wonder why I wasn’t considered for that….Still feeling pretty whiny about the whole experience, sorry….

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